Last December, I wrote a post about being asked to be part of a focus group regarding CVID, (the illness/ diagnosis I have).
*–sidebar—I never quite know what to call it. Disease doesn’t seem to fit, as it’s not something communicable, and not something I caught from someone else (other than possible in utero); ‘condition’ doesn’t really fit either; which leaves me with illness, but that doesn’t seem to fit either, because it’s actually other illnesses I get (bronch, sinus, (and now apparently ear infections). So, I end up calling it ‘my diagnosis’. What do I call it? Any recommendations, Dr. Mark?
Anyway, I had an email from the Primary Immune Deficiency Foundation, that there was going to be another focus group for Immune Deficiency (non-HIV) patients who receive infusions of IgG. Once again, it pays an honorarium and mileage. However, there was no mention of snacks this time. If I could get one of these gigs every month, I could start breaking even on my monthly meds co-pays at Walgreen’s!
The focus group is next Saturday. I’ll give a report after it occurs.