Quote of the week:

“They'd have to shoot me to get me back to Illnois."

~Abraham Lincoln upon going to WDC to become president

Monday, February 2, 2009

San Francisco, Synchronicity, other Miscellanea, and a Proclamation.

San Francisco, Synchronicity, Other Miscellaanea & a Proclamation

I have not posted for awhile. These are some very quick RANDom Thoughts, in buckshot dispersion method. I’m trying to get caught up from the last round of being sick, and I just got back from (almost) a week in San Francisco, where it was sunny, and the weekend that I had free after the conference, the temperature was in the 60s and 70s. It was 11° F when I left Chicago last Tuesday.
The Conference was good. I think the presentation I was a part of went well, and did I mention it was over 70° when I was there, in the Castro? I HEART San Francisco! This Friday (February 6) is my birthday, so the extra days there, post conference was my birthday gift to myself. Good things happened, while at the conference. I have more to write about, and an announcement to make, but not until Friday.
Given my recent bouts of sickness, I geeked up and wore the surgical mask while in the airports and on the plane. When I got back to Chicago, I was waiting for my bag at the carousel and a woman came up to me and said, “I wear masks when I fly too. I have an immune deficiency.”
I replied, “I have CVID.”
“Me too! I knew there was a reason I had to come up and talk to you!” She introduced herself—we did ‘air hand shakes’. Bonnie is her name.
“People tend to avoid me when I mask up”, I replied.
We chatted a few minutes waiting for our bags. She told me about a doc/specialist she went to in NYC, and she has just gone off of the monthly IVIG. We exchanged cards, to discuss further. She was concerned that most all the others’ bags had come. I’m used to being one of the last to get my bag. She then realized she was at the wrong carousel. Synchronicity! You know I’m not a believer in a god. And I have written before about my appreciating for Jungian psychology and his theory or Synchronicity —meaningful coincidences. I love it when shit like this happens. It was the perfect way to end this very interesting trip. My bag comes by finally. Bonnie asks, “Are you coming from NY also?
No, I’m returning home from San Francisco.” Bonnie had gone to the wrong carousel, found me, and we started talking. TOTAL SYNCHRONICITY, with meaningful mistakes. She should not have been waiting for her bags where I was.
I’m making a proclamation that 2009 is going to be the year that does NOT SUCK SHIT! After a bumpy start with the URI, some events have occurred which are going have great impact on me and my future. This I will write about the end of the week for my birthday post on Friday. Please feel free to send lavish gifts.
For those of you wishing to acknowledge the date, to help counteract the universe for me being born on he same day as ronald reagan, (that festering boil on the ass of this nation's history, which ahs now been taken over by the blighted cancer of w & cheney w ho are to true cancers of this nation's history). But I digress Getting gifts and new cloths would easy my pain of sharing a bd with rr,,l rather than Abe Lincoln, my hero.

I did my portion to help the economy of SF by making some clothing purchases. But, My favorite store, “All American Boy” closed down! I was SO bumbed! I arrive last Tuesday at the Marriott, check, and head out the door, to catch the F street car down to the Castro. I have to eat, so hit the little diner I've eaten at before on Castro, just off Market. Receiving my shopper's sustenance, I head a across the street, pass by a dark, empty store with some signage of All American Boy Remaining. I am crestfallen. This is where I bought my ‘Castro 2004, 2003, 2001” annual shirts from when I visite in past years. I must get my “Castro 2009” shirt! I find it back across the street at a new store IN JEAN IOUS. It’s not AAB, but I walk out with some bargains.

Saturday night, on the recommnedation of one of the guys at Parker Guest House B&B, I go to Chow Restaurant at 215 Church st, just off Market. In the Castro, SOMA (South of Market). I ate at this restaurant 3 times in less than 24 hours. If I were doing Dr. Mark’s little survey I’s have a restaurant to add. CHOW is great. Organic food, good, food, and you can tell these people enjoy working there. I like going to a restaurant saying, “I can decide between such and such, and s/he proceeds to tell you details about the dishes you asked about in great detail with the things they like about the particular dish.
I will have more to tell about SF. But I must wait until later in the week for reasons that will become obvious. For now I’m back, tired (but healthy—say something to the Buddha so I stay healthy. More later when I’m vaguegly cogent. ©wtf4/rle

Tuesday, January 20, 2009

Back among the Living

I am finally back among the living. This last bronch infection really beat the shit out of me. Each one seems a bit worse than the last. Coughing up bloody chunks of lung just ain't fun.

And even when I'm sick in bed, life goes on--the good with the bad.

The good: Last week, I became a great uncle for the second time, against my protestations that I'm still too young to be a great uncle. My niece had another beautiful baby girl. Both are healthy.

The bad: When I was at my parents' after Christmas, as always, I went to see my Aunt Alice, Mom's oldest sister, who partially raised my Mom, so she's always been more like a Grandma. Her Alzheimer's is progressing rapidly. It's hard seeing her decline. She knew me, which has been a fear of mine for the past year or so, since I don't get down to see her more than 2 or 3 times a year. She's been in a Seniors assisted living facility. Other residents said of Aunt Alice, "we can tell she WAS a really caring compasionate person." Hearing her referred to in the past tense when she's not dead is strange.

Monday she had to go to a nursing home, after a short hosptial stay last week. This fucking disease is a theif. It has stolen her life. Antithetical to the last sentence of the previous paragraph, She is no longer alive. There's no quality of life. She's a body that is rapidly losing its soul. IF there was a god, 'he' would take her to her glory, as the bible thumpers are wont to say. She worked hard all of her life. This is not how it should end. It should have ended before reaching this point.

My love of cooking, and skills thereof are a legacy of my Mom and Aunt Alice. She could cook for 3 to 300. She ran a restaurant when I was little, and later was the cook at the my grade and high school cafeterias before she finally retired, to care for my uncle, who had Alzheimer's before he finally died, not knowing any of us. Fucking cruel universe.

Monday, January 5, 2009

For those keeping score at home

...Get out your calendars, and magic markers. Start the office pools. I had nearly two full days of health in the new year before getting sick. My first bronch infection of the year arrived on January 3rd. I'm now coughing up chunks of lung. I figure tomorrow and Wednesday are going to be the 'peak' days, when it's at its worst. At this point in history, the anticipation is almost as bad as the actual peak of sickness...almost. My next infusion isn't until next week, so I should be at a decent IgG level--especially since this hit last week. I better be in good health when I go to San Francisco at the end of the month or I'm going to be extremely pissed.

I was not able to get in to my PCP today, so I'll see him tomorrow, proably get a shot in the ass, and put on oral antibiotics.
I'm enough of a regular now, that I have the little playful banter with much of the staff. If "T", the hot little tech comes in with the bottle and syringe, I ask, "Do I need to drop trou?"
He says, "yes."
I reply with, "OK, but you first."
The ice is broken. If only dating were that easy.

Saturday, January 3, 2009

FULL CIRCLE

After Christmas, I was able to visit my friends Jeff and Lynette, the same who were part of the group of friends I was with when I did the Polar Bear Plunge as written about here
http://randomthawghts.blogspot.com/2008/10/taking-plunge.html
Jeff was the first person I came out to (after my shrink at the student counselling center). At the time it was difficult for Jeff (though he didn’t show it). In addition to being my friend, Jeff was also my minister at the Church/Foundation I was involved with at the time. My coming out was a slap in the face of the theology he adhered to—that he and I both grew up with. Knowing me as well as he did was incongruent to what I was supposed to be in/with the church. He had to rethink and recalibrate his theology and what the church was saying. The night I came out to Jeff, he told me it didn’t matter, that it didn’t change how he felt about me, which wasn’t totally true, but those were the words that I had to hear at that moment in time, and that much he realized, and realized how a negative reaction would have devastated me. He came around. His theology changed (as did mine), and while he helped me through coming out, I was his friend and confident while his marriage was falling apart, and a new relationship was materializing. We were each in our own closets and self and societal imposed hells, in tandem. Before he was willing to admit to himself (or others) during a Christmas break work trip working on a Habitat for Humanity Project, I took him outside one day and said, “Jeff, I expect to be your best man when you and Lynette get married.” That blew him out of the water. –for the record, I was his best man at their wedding(s) the legal one at the court house and the ceremonial one a few months after for family and friends. But that’s another story. Jeff ended up leaving the church. So, in addition to being a godless homo heathen, I can claim some role in taking a hetero minister out of the pulpit. They became Unitarians. I became an eventual atheist, with Buddhist leanings. But I digress, yet again.
Jeff and Lynette have a beautiful teenage daughter (M), (along with Jeff’s son (F) from his first marriage) whom I have watched grow into the incredible young adults they are. They are the closest I will ever get to children of my own. I’m closer to them than I was my nephews and niece growing up (due to geography and strained familial relations for some years.) I have always had a special connection to F & M. M came out to her family about a year ago. She’s currently dating a girl from school. She really wanted me to know about it, and wanted to tell me about it. But I needed to initiate the conversation. I had to get cues from Jeff, as I wasn’t sure how much I was ‘supposed to know’. I didn’t want to say or ask too much, to embarrass her or anger her at her parents for telling me family stories outside. At one point, Jeff & I walked to the kitchen. He said, “M is dying to tell you about her girlfriend.” That was all I needed to be able to go back to the family room and make/find an opportunity to ask M about her gf. I was honored that she wanted me to know.
Jeff and Lynette live out in a beautiful wooded area. It’s like a retreat for me to visit them. Birds, deer, wild turkeys, and other kinds of woodland wildlife are right outside the windows. On Sunday afternoon, Lynette, Jeff and I took a walk down the road(s). It was a bit too wet, icy and treacherous to tromp through the woods. As we tend to do when together, we conjure up ‘Another Olde Lang Syne” and reminisce with wonder about where the years have gone, how gray Lynette and I both are (Jeff barely has a dusting of S&P at his temples and he’s the oldest!) While on this walk, Lynette thanked me for asking M about the gf, and the manner in which I did so. Then, Jeff thanked me for being who I am, and for teaching him so much as it made all the difference in how he responded to M when she came out to them. I was so blown away and so deeply touched. We have been strong, deep friends for almost 25 years. To have this added dimension—to have been able to have this kind of unexpected impact on all of them is the cherry on the sundae, the icing on the cake--choose a metaphor. It’s really an honor. For many people in my large circle of family and friends, I have been their ‘first gay’. Over the holidays and ‘season of reminiscing, others have told me how much knowing me has impacted them and taught them. It’s sort of like my own version of being Jimmy Stewart in “It’s A Wonderful Life”. They are great reminders to receive, and important for the times when I contemplate my worth and value to the universe. I know that there is a legacy that is mine, that will remain after I’m gone.

©wtf4/rle

Saturday, December 6, 2008

Meme

I’m self responding to a meme from Mark at http://mouseasthma.blogspot.com/ He tagged me a long time ago for a 6 word autobiography which I never completed, as I found the 6 word limitation much more difficult that I realized, and I’ve felt somewhat guilty (well, as much-or little as I allow myself to felt guilty—giving up religion is so liberating! So, here goes. I’m not certain if there’s significance to the number 8.

Shows I Watch
1. Prison Break
2. Eli Stone
3. Survivor
4. 30 Rock (People YOU really need to watch this show!)
5. ER
6. Project Runway (or Bravo show in the timeslot---currently Top Chef)
7. Daily Show/Colbert Report (They count as one in my book)
8. Supernatural
There are many more—I watch too much TV

8 Favorite Restaurants, in no particular order
1. Calo {Italian} (Chicago)
2. Le Bouchon {French} (Chicago)
3. Ann Sather {Andersonville location] (Chicago) (great comfort food
4. Tavern on the Green (NYC)
5. Joe Allen (NYC)
6. K Paul (New Orleans)
7. E.A.T. {Deli} (NYC)
8. Summer {great Asian between my El stop and my co op)

Things that happened today (over the past 24 hours roughly 9:00 – 9:00; 12/6) (It’s a very atypical Saturday, since I’m still sickly.)

1. Woke up-slowly (the slow part is typical)
2. Made mocha latte & cinnamon toast
3. Trimmed beard, showered
4. Listened to the Saturday morning NPR run (Car Talk, Wait, Wait, This American Life [and the Rock Show-can’t remember the title]
(A trip to the gym would normally have occurred somewhere here)
5. Spent time on the computer
6. Walked to the grocery store, Came home wiped out.
7. Changed the bed sheets and napped
8. Fixed some dinner/ateWatched TV & time on pc (& doing this meme.)

I will follow Mark's lead and invite any of my throng of regular readers (alll three of you) as well as any one else who stumbled along here to take up this meme for themselves. I won't be doing any formal tagging.

Wednesday, December 3, 2008

Not Hypochondria

Sometimes I wish the illnesses were JUST in my head—that I was somehow imagining it. After 3 days in bed, vacillating between chills and sweats, soaking the sheets, I saw my dr. today. (I called Monday morning, this was the first opening and I didn’t call the nurse to bump me in this time). I have fucking strep throat—AGAIN! Second time this year. This isn’t on the list of approved illnesses for CVID. WTF?! Seriously, WTF!? I’m so pissed with myself that this one didn’t enter my radar as a possibility, and I didn’t figure this one out. Two weeks ago at my last infusion, my throat was scratchy. He did a strep test then. It came back negative. So, instead of being top of mind, my dyslexic brain erased it from the possible options.
This time, my tongue scrape solution barely hit the blotter before showing the + sign. Strep tests are now like pregnancy tests (not that I have any experience with those), Plus you don’t piss on the test strip. Other than that, they’re similar. But, they take a swab from the back of your tongue, mix in a little tube of solution, pour the tube onto the little holder and wait to see if the + sign shows up. Instead of being knocked up, you have strep…and it doesn’t last for nine months.
So, I was right. I’m really sick again. Sometimes being right sucks shit. I prefer my sick when it's combined with twisted.

Tuesday, December 2, 2008

Second Annual World AIDS Day Post

Preface: “The road of good intentions is paved with”—what’s the rest of that saying? My intent was to have this posted for the 20th Annual World AIDS Day commemoration and my 2nd Annual on December 1. I started writing it last week. Then the universe intervened and I’ve been in bed the past two days feeling like shit with a fever vacillating between 99 – 102. It’s currently at the lower side. But it messed up my plans for a timely post. So here it is, a gay late and a dollar short, typed in bed on my laptop between the sweats and chills and naps.

Since I wrote my first post last year ( http://randomthawghts.blogspot.com/2007/11/world-aids-day-december-1_28.html ) I now can call this my “Second Annual World AIDS Day Post”. With some frequency, I will have someone come to me a work with a proposal for a new educational program with the proposed title, “First Annual…” I’m continually trying to explain to physicians that you can’t have a “First Annual “ anything. For something to be an annual event, it has to have occurred AT LEAST once, the year previously. But I digress.
I’m hopeful that the new administration will see the HIV/AIDS epidemic as the public health issue that it is and NOT a moral issue. Yes, W has acknowledged the world wide catastrophe that AIDS is. Yet on the national front, HIV prevention and education funding still lapses.
Needle exchange IS a proven HIV prevention method.
Safe sex and condom use is essential for prevention of disease transmission.
Making condoms available in prisons prevents disease transmission.
News flash: telling prisoners not to have sex is just as effective is was for Sarah Palin’s daughter.
A pointy hat, satin robe, and ruby Prada shoes are not qualifications for making pronouncements about public health and convincing people to not practice safe sex out of some archaic and arcane obligation. The question these people really need to ask, seriously, “WWJD”? Then they need to step back and let people who know public health do their jobs without religion.
The thing that is still increasingly disturbing (and increasing in incidence) is the rate raising rate of new HIV infections among young gay men. Earlier this Fall, I attended an luncheon lecture as part of GLTB week surrounding National Coming Out Day. At the end, the presenters took questions. I raised the question, “What has our generation done wrong, in that the safe sex message did not transfer down to the new generation of gay men?” While the advent of the drug cocktails have been some of the best things to happen, I think we became complacent with the original safe sex message. It lost some of its importance. The message somehow became, “It doesn’t matter if you get infected, you just go on the cocktail.” The thing I just can’t wrap my brain around is how some view becoming HIV positive as a ‘right of passage’ in the progression of fully becoming a gay man. My generation really has fucked up, when we’ve allowed this to become one of the prevailing messages that we bequeathed to the current generations. We have to leave a better legacy.

©wtf/rle
Post Script
Any portion of this that doesn’t make sense, I blame on the fever and apologize.
Any portion of this that you may find offensive, I attribute to my abrasive nature and make no apologies.